EU Project Experience

No experience

This organisation is new to EU funding and will be supported by the Access Europe team.

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‍EU Funding Goals

We are interested in building our skills as partners in European health research networks and projects.‍

As we represent the interests of charities/non-profits in a range of disease areas and social care needs, we are interested in partnering on projects that would have a broad impact on human health and well-being, either directly or indirectly.

Our current goal is to join networks or projects focused on health, medical or social care research. We are particularly interested in research or initiatives:

• with potential impact for patients across many disease types
• with the potential to impact public health
• aimed at improving the lives of people with rare diseases
• aimed at improving the involvement or engagement of patients or the pubic in health research
• with the potential to improve health research infrastructure e.g. patient registries or practices such as open research
• focused on the role of patient organisations or health research charities
• with the likelihood of broad positive impact on human health and wellbeing.

In addition to having a positive impact on health and wellbeing, we are keen to grow our knowledge and expertise in any of the above areas, further broaden our network of relevant stakeholders and grow our team.

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Strengths

We are a highly respected Irish umbrella organisation of charities and patient organisations active in health research, together representing over 1 million patients. As such, we have access to the collective knowledge and expertise of over 40 member charities.

We also have strong in-house expertise in the following areas:

• 1. We are leaders in patient and public involvement in research (PPI), also referred to as engaged research. We run a PPI Shared Learning Group for over 30 of our member charities. We've developed a number of PPI resources and are frequently asked to share our PPI expertise through national and international events and initiatives.
• 2. We have an excellent track record in influencing policy. For example, we run the Irish Health Research Forum. This is the only such national forum discussing health research policy in Ireland and recommendations from its events are widely used. We also produce an annual Position Paper advocating for change, which is widely read and referred to.
• 3. We have deep knowledge of and access to patient organisations and health research charities.
• 4. As a leading voice in Irish health research, we have extensive research expertise, a strong knowledge of research processes and a wide and diverse network in health research.
• 5. We offer strong communication and dissemination skills with particular abilities in communicating complex topics to the general public. We have expertise in social media, newsletters, website management and blogs. Our CEO is a frequent public speaker.